ALS SUCKS, let’s do something about it. Bulbar-onset ALS is not for the faint of heart, it takes someone as strong and brave as my Dad to fight.

One of the many lessons he taught me was to pay it forward and because of that I'm participating in ALS United Greater New York’s Walk to raise funds that will support individuals and families affected by ALS, like my own.

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. My Dad fought for 5 months and it was the hardest fight of his life. However, like a true Burke, he never complained, gave up or questioned “why me.”

Unfortunately, ALS can strike anyone regardless of age, gender, nationality, or ethnicity, although it is primarily an adult-onset disease. Currently there is no known cause or cure.

Please consider supporting my efforts by donating through my fundraising page. Your donation today will help fund resources and services to the local ALS community, help find new ALS treatments, and move us closer to a world without the truly awful disease.

I made many promises to my Dad including plans for the future, paying it forward and living my life to the fullest.

I will continue to do all of these plus learn and advocate about ALS with the support of The Healey Center for ALS at Mass General and raising money for ALS United Greater New York’s Walk.

As my Dad said, “Time marches on,” so let’s march together and end ALS. 

Please feel free to send this page to any friend or family member who might be interested in donating or walking with me. If you can’t participate, please join us on May 4th and cheers with a glass of Jack to honor the best Dad because you know he will be.I love you Dad! I am so lucky to be your kid.