On April 11th, I was diagnosed with Bulbar ALS. Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. Currently there is no known cause or cure.

That said, life has its silver linings. I am the recipient of so much love, kindness and support from family and friends. So many people have stepped up to encourage me and cheer me on. I feel an enormous sense of gratitude. Although I can no longer speak, I am still me.

My team, Dani’s Defenders, is walking across the Hudson on October 20th. I hope you can join us in person or in spirit. I am raising funds to support an amazing organization, ALS United Greater New York. I’ve already had two home visits and support is just a phone call away. It is people like them who humanize the experience of this awful disease.

Being a part of ALS United Greater New York’s WALK ALS is the number one way to unite and fundraise for those living with ALS. 

Your donation today will help fund resources and services to the local ALS community, help find new ALS treatments, and move us closer to a world without the disease. 

Please feel free to share this page with any friend or family member who might be interested in donating!

Thanks!!

Dani Glaser