I have decided to join my cousin David's wife and daughter Eleanor for the Walk ALS across the Hudson this year on Sunday, October 20th.  In addition to Eleanor's dad David who passed at 37 years old, I will also be walking in support of my dad (Robert Hart) Big B that died in 1987 at 53 years old.  They were both taken way before any of us were ready to let them go. My dad lived for 6 months from his diagnosis was able to throw a 30th birthday party for my brother and see his first grandson.  My cousin endured over 2 years of despair - loss of speech, muscle control taking his body under it's control.  The last time I saw David was a few months prior to his passing, but he never lost his ability to communicate with those big brown eyes!!! It brings tears to my eyes always for both of them.

I watched the MDA Telethon faithfully for as many years as I can remember - staying up through the night and thankful for all the donations that came in.  My annual donation was a pittance of what was collected, because we had another reason to donate.  On my dad's side of the family, we had several loved ones that were diagnosed with CMT (Charcot-Marie-Tooth), another MDA disease.  Little did we know at the time, that we would add one more personal disease that was part of their ongoing research.  I get very emotional every time I think of family members that we have lost to these diseases.

I'm hopeful that if you know me, you know how passionate I am for fund raising for causes that are near and dear to my heart.  My family ran and fundraised for my niece's son Aydan for 10 years and miraculously he is 17 now.  I do hope that you never have to experience such painful losses and that you will support April, Eleanor and I in 'Our Walk for Love' which is what I am calling it.

Thank you for visiting my fundraising page. Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone regardless of age, gender, nationality, or ethnicity, although it is primarily an adult-onset disease. Currently there is no known cause or cure.

Being a part of ALS United Greater New York’s WALK ALS is the number one way to unite and fundraise for those living with ALS. Please consider supporting my efforts by donating through my fundraising page.

Your donation today will help fund resources and services to the local ALS community, help find new ALS treatments, and move us closer to a world without the disease. 

Please feel free to send this page to any friend or family member who might be interested in donating!

Thank you.