Push Your Limits. Fight ALS.
Hi All!
I will be running the New York Marathon this November in honor of my dad, Edouard Lebel, who passed away from ALS in 2022.
The effects of this disease extend beyond the individual, impacting entire families. Throughout my father's journey with ALS, our family was fortunate to be surrounded by a supportive network of extended family and friends. I’d like to give a special shoutout to my mother, Sabine, whose tireless care and dedication ensured that my dad’s comfort was a top priority. I hope that my fundraising efforts can help with finding a cure so no family has to experience life with ALS.
I truly appreciate any donations. Please feel free to send this page to any friend or family member who might be interested in donating.
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Your donation today will help ALS United Greater New York fund resources and services to the local ALS community, help find new treatments, and move us closer to a world without the disease.
Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive disease of the nervous system that affects nerve cells in the brain and the spinal cord.
- Every ninety minutes, someone is diagnosed with the disease, and someone passes away from it.
- 90% of ALS cases occur without any known family history or genetic cause. The remaining 10% of ALS cases are inherited through a mutated gene with a known connection to the disease.
- 55 is the average age of onset with most people who develop ALS between the ages of 40 and 70. However, cases of the disease do occur in people in their twenties and thirties.
- ALS is 20% more common in men than women. However, with increasing age, the incidence of ALS is more equal between men and women.
- Military veterans are twice as likely to be diagnosed with the disease than the general public for yet unknown reasons.
This is why running with Team ALS is important to me. Please help me move a cure for ALS over the finish line by donating today.
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