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  • Griffins of the Lair Walk for ALS Page

    Donate Now

    This is a message from my heart so I hope you'll read it, or at least, jump to the bottom to donate.

    On Saturday, Sep 13, 2025, I am once again participating in the Walk ALS Jersey Shore as captain of The Griffins of the Lair ALS Team. I will be walking alongside my husband, Jim (Griff) Griffn, who is now into his fourth year fighting this incurable disease with all his might.

    My goal is to raise $2000 this year, individually, and to see the team reach at least $5000, because I’m trying to do everything I can to support individuals and families affected by ALS and make an impact locally.

    Obviously, as Jim's wife of 37 years, I have a very personal reason to walk and raise money. I know the devastation ALS brings on those with the illness, and on their family and friends. And I know how much it costs to properly support those on this journey.

    We need a cure. Jim spent 18 months as a trial participant on a hoped for breakthrough treatment that ultimately was not successful. But hopefully his efforts will provide much needed data that will help the next trial achieve better success. With your support, we can help Jim achieve his stated goal allowing someone with ALS to "beat this f#*$ing disease."

    Please join us in person, in spirit,  and/or financially. 

    Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. Currently there is no known cause or cure.

    Being a part of ALS United Greater New York’s WALK ALS is the number one way to unite and fundraise for those living with ALS. Please consider supporting my efforts by donating through my fundraising page.

    Your donation today will help fund resources and services to the local ALS community, help find new ALS treatments, and move us closer to a world without the disease. 

    Please feel free to send this page to any friend or family member who might be interested in donating!

    Thank you.

    View More
    Donate Now
    The Griffins of the Lair
    Achievements
    TeamRaiser Achievement Badge
    Raised $5,000
    Raised the amount of money defined for this milestone
    TeamRaiser Achievement Badge
    I Made a Difference!
    I supported this event with a personal donation.
    Personal Progress:
    of Goal
    $7,804 Raised
    $4,000.00
    Fundraising Honor Roll
    Anonymous
    $1,000
    Joan Griffin
    $500
    P²
    $500
    Francois Letaconnoux
    $500
    Anne Frates
    $500
    David Waggett & Carole Schaffer
    $250
    Rose and Rob Capon
    $250
    Pat & Bill Kopp
    $250
    Mickey Paddock Bright Griffin
    $250
    Helen & Thanassis Mazarakis
    $250
    Chaitali Pimputkar
    Anonymous
    Bruce Ferguson
    $154
    Alison Dyer
    $150
    Bob and Nancy Solomon
    $150
    Margaret and john
    $100
    Stephen P McNamara
    $100
    Anonymous
    Penny Hunt
    $100
    Ike Griffin
    $100
    Leah Solomon
    $100
    Rich and Janine Everett
    $100
    shelley phillips
    $100
    Lisa Kothari
    $100
    Andrew & Deirdre Ragusa
    $100
    Lisa Stoeffel
    $100
    Connie Dowlen
    $100
    John Shriver
    $100
    Lisa Atlas Genecov
    $100
    Carol and Alan Shumway
    $100
    Elise & Michael DeMarzo
    $100
    Ron Lyons
    $100
    Arlene and Michael Vislocky
    susan
    Mara Novak
    $50
    Paul Goudie
    $50
    Susan van Inwegen
    $50
    Sarah Blodgett
    $50
    Patricia Pancoast
    $50
    Sheila Curry Oakes
    Frankie Spear
    $50
    Marty Jackson Moore
    $50
    Carol Schlein
    $50
    marty turlin
    $50
    Megan, Jake and family
    $50
    Benton Bailey
    $50
    Bobby Gallagher
    Courtenay Huff
    $50
    Dan and Nancy Weiss
    $50
    Frederick Meyerson
    $50
    Stacey Malcolmson
    $50

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