This is my fourth year participating in the fundraising walk to defeat ALS. This year the walk is taking place September 20, 2025 at Eisenhower Park, East Meadow Long Island.

The walk to defeat ALS not only raises funds to support those living with ALS, at no charge, but also funds research programs working on treatments of this devastating disease.

I continue to fight to keep my spirts high. The funds raise from this walk will provide funding for researching treatments to stop my progression and ultimately a cure. With the recent funding cuts we read about today, helping to support this research in the sciences is more important than ever.

ALS Also known as Lou Gehrig disease is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breath. From the time of a diagnose "you have ALS", the average life expectancy is 2 to 5 years.

This is why I’m again walking to change this a statistics and bring hope to those living with this disease. The ultimate goal is that no one ever hears the words you have a ALS again.

We can’t stop now. I am one of those living with ALS and hope this momentum continues and a cure is very close. Please consider joining me on this walk or sponsoring me. With your support, every little bit makes a difference in the lives of people affected by this disease.

Thank you for your support,

Susan