ALS United Greater New York
ALS United Greater New York
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  • My Personal Walk ALS Long Island Page

    Donate Now

    Well, another year has passed and there is still no cure. 

    Once again, Bowler's Rollers will be hitting the pavement to raise funds to find a cure for ALS. We do this in honor of my nephew, Sean Bowler, who lost his life to this awful disease at the age of 29..Son, brother, nephew, cousin, friend, teammate, teacher and the strongest, most courageous and  faith filled individual you would ever meet. His passing is felt every day.by us all.

    Some of you might be wondering--how come there is no cure yet? Where are our donations going? Every dollar raised goes to fund research, provide patient cares services and advance policy to push legislative changes that benefit the ALS community, helping to secure funding for care programs, resource educational seminars and referrals for treatment and support.

    In 2025 trials have been funded in gene therapy that target genetic mutations responsible for the disease that aim to correct underlying genetic defects and slow progression of ALS. Stem cell exploration is taking place to replace damaged motor neurons potentially to halt the progression of the disease. These are just a couple of trials and research that are taking place.

    Your donations DO MAKE A DIFFERENCE!!

    So, once again, I ask you to help us out and if you can, please helP,in honor and memory of Sean, to reach our goal to help eradicate ALS. The suffering for the person affected and their familites has to stop.

    THANK YOU FOR ANY HELP YOU CAN GIVE US. NO DONATION IS TOO SMALL. YOU WILL BE IN MY PRAYERS ALWAYS. 

    (If you are willing, please feel free to forward to those you know that might wante to help. Sean was a graduate of St. Anthony's High School, Williams College and lacrosse player at both.)

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    Donate Now
    Bowler's Rollers
    Achievements
    TeamRaiser Achievement Badge
    Raised $1,000
    Raised the amount of money defined for this milestone
    TeamRaiser Achievement Badge
    I Made a Difference!
    I supported this event with a personal donation.
    Personal Progress:
    of Goal
    $1,350 Raised
    $500.00
    Fundraising Honor Roll
    Julie Stewart-Binks
    $500
    FLORIDA BOWLERS
    $500
    The Rogers family
    $150
    Meg Malangone
    $100
    Robin Lemkin
    $50
    Ginger O'Neill
    $50

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    ALS United Greater New York
    42 Broadway, Suite 1724, New York, NY 10004
    Phone: (212) 619-1400
    Email: als@als-ny.org
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