ALS United Greater New York
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  • Team J.A.C.K. - Why We Walk ALS

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    Thank you for taking the time to read this story, I hope you are moved to act.



    Ten years. TEN YEARS. That’s how long it’s been since we’ve talked to Chris, since we’ve hugged him, since we took a walk or played a game with him. Since Chris was able to tell us how much he loves us.

    We began fighting for a cure before we even knew that Chris was sick. August 2014 - Chris and I did the ice bucket challenge in our backyard with friends. The kids did it the next day. And we donated because we felt sympathy when we saw photos on the website.

    We had absolutely no idea that a year later, our world as we knew it would cease to exist because of ALS. Chris started having symptoms, was diagnosed, and lost his fight – like every ALS patient does – in a span of eight months.  

    Imagine that. In December you are fine, joyfully celebrating the holidays. In January your thumb is numb. In June you are diagnosed with what many consider the worst disease, one that robs you of your ability to move but not of your ability to feel, to think, and to know what is coming. In August, you can no longer breath without a machine, and, wanting your kids to remember you as a fun, playful, and loving dad that did anything and everything for them, because your kids are the center of your universe, you go Home.

    Ten years later, we are making progress, but there are still families going through what we went through. That is why we formed TEAM J.A.C.K. (Jacob, Abigail, Chris, and Kelly) - to fight for a cure. For as long as it takes.
    On September 20, 2025, TEAM J.A.C.K. will walk our 11th Walk ALS. We will not stop fighting, not until there is a cure for ALS so no one – no child, no parent, no spouse, no friend – has to suffer the loss of someone they love to ALS.

    Thank you, on behalf of Team J.A.C.K. –Jacob, Abigail, Chris, and Kelly – thank you.

    Sincerely,
    Kelly Risotto
    Team J.A.C.K.

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    Team J.A.C.K.
    Achievements
    TeamRaiser Achievement Badge
    $5,000 Raised
    Raised the amount of money defined for this milestone
    TeamRaiser Achievement Badge
    I Made a Difference!
    I supported this event with a personal donation.
    Personal Progress:
    of Goal
    $6,472 Raised
    $10,000.00
    Fundraising Honor Roll
    Jonathan Sobel
    $1,000
    Fred Carillo
    $515
    Jacquie Holmes
    $500
    LargaVista
    $500
    Tony Vournou
    $500
    Jason T Roff
    $500
    Anonymous
    Northcoast Civil
    $250
    R&M Engineering
    $250
    Cathy Argentieri
    $200
    Julia Priolo
    $103
    Howard Chatzinoff
    $103
    Fred katz
    $100
    Pat & Jim Murphy
    $100
    Company Mill Creek Marina Inc
    $100
    The Meluso Family
    $100
    Janet Hurley
    $100
    Richard Remmer
    $100
    Anonymous
    $100
    Anonymous
    $100
    Kelly Risotto
    $100
    Thom. & Theresa Lawrence
    $100
    Karen Frome
    $100
    Andrea Prunty
    $60
    Joyce Buchholtz
    $51
    Dot Neff
    $51
    Katie Fox
    $51
    Angie Apolinaris
    $50
    David Diamond
    $50
    Mike Keffer
    $50
    Jenna Bello
    $41
    Urszula Gl
    $25
    Cathy Maz
    $20

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    ALS United Greater New York
    42 Broadway, Suite 1724, New York, NY 10004
    Phone: (212) 619-1400
    Email: als@als-ny.org
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