My Personal Walk ALS Long Island Page
Thank you for visiting my fundraising page. I'm participating in ALS United Greater New York’s Walk.
There are so many rare diseases that face chronic underfunding due to lack of awareness, pharmaceutical companies not investing in research due to poor profits on rare disease drugs , high research costs for limited patient population for clinical trials , among numerous other reasons. ALS is no exception!
This is a cause deeply personal to me as one of my very dearest friends has been diagnosed with ALS. To say she is one of the most kind, caring and loving people is an understatement and not to be overshadowed by her strength and tenacity while helping to create awareness and fight for a cure. She is certainly one of a kind! I love you my friend!
You may all recall the ice bucket challenge from a few years ago. This was probably the biggest bump in awareness and research funding dollars since Lou Gehrig put this disease on the map. It was 75 years between those 2 events!!! Unbelievable!! So much more is needed...and so much more is deserved! Please help us put this in the forefront once again!!
Please read on to learn more about ALS:
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone regardless of age, gender, nationality, or ethnicity, although it is primarily an adult-onset disease. Currently there is no known cause or cure.
Being a part of ALS United Greater New York’s WALK ALS is the number one way to unite and fundraise for those living with ALS. Please consider supporting my efforts by donating through my fundraising page.
Your donation today will help fund resources and services to the local ALS community, help find new ALS treatments, and move us closer to a world without the disease.
Please feel free to send this page to any friend or family member who might be interested in donating!
Thank you.
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