ALS United Greater New York
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Push Your Limits. Fight ALS.

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I am running the 2025 NYC Marathon with Team ALS to support those affected by ALS, spread awareness of our cause, and fight for a cure. By partnering with ALS United Greater New York, all the funds I raise will go toward where it's needed most: vital research, community support, and patient services. 

I will be running in memory of my friends, Mark Van Schenkof and Connie Cafaro.  

In the face of this terrible disease, Mark found all the positives in life.  Mark was a true inspiration to me, and to most everyone who knew him.  On the day he revealed his ALS diagnosis to me, he brought in two bow ties and taught me how to tie one (the picture is from that day in 2019).  Anyone who has been in my office on a Monday knows of Bow Tie Monday; a tradition we created together.  Bow Tie Monday lives on in Mark's honor.  Every day at 10AM when "Don't worry, be happy" comes on, we smile and think of him singing that silly song - brightening up everyone's day.  

Connie was a wonderful person, and a dear friend to my family.  I am running this marathon because I CAN, and I know that Mark and Connie would love that.  Thank you in advance for donating, and helping us END ALS!

Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive disease of the nervous system that affects cells in the brain and spinal cord. Presently, there is no known cure for ALS.

  • Every ninety minutes, someone is diagnosed with the disease, and someone passes away from it.
  • 90% of ALS cases occur without any known family history or genetic cause. The remaining 10% of ALS cases are inherited through a mutated gene with a known connection to the disease.
  • 55 is the average age of onset with most people who develop ALS between the ages of 40 and 70. However, cases of the disease do occur in people in their twenties and thirties.
  • ALS is 20% more common in men than women. However, with increasing age, the incidence of ALS is more equal between men and women.
  • Military veterans are twice as likely to be diagnosed with the disease than the general public for yet unknown reasons.

I joined Team ALS to push my physical limits for those who can't anymore. I want to bring hope, raise awareness and make an impact - and you can help me! Please donate, because -

Together, We End ALS!

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Achievements
TeamRaiser Achievement Badge
$2,500 Raised
Raised the amount of money defined for this milestone
TeamRaiser Achievement Badge
I Made a Difference!
I supported this event with a personal donation.
Personal Progress:
of Goal
$4,257 Raised
$10,000.00
Fundraising Honor Roll
Robert Brooks
$1,000
Scheinman
$267
Carol VanSchenkhof
$206
Michael and Suzanne Ziegebaum
$200
Josh Polsky
$150
Houman Danesh
$129
Stef Blumencranz
$103
Bill Carmody
$103
Jared Smith
$103
Gabriella Stein
Jackie Bodner
$103
Carol van Schenkhof
$103
Ilona Shendell
$103
Kathy Walsh Levinson
$103
Connie Cafaro
$103
Marti and Mitch Cohen
$103
Derek Cherney
$103
Richter Family
$103
Dr Ellen B Shields
$100
Eytan & Kerri Saperstein
$100
Michael & Mary Jo
$100
Sam Fried
$55
Anonymous
Eric Sealove
$51
Borow's
$51
Loredana Beg
$51
Anonymous
Brenda Tirsun
$51
Burack
$51
Evan Marin
$51
Louise Fribush
$51
Cliff M
$51
Jessica Donohue
$51
Aj Cahill
$50
Natasha Khetani
$50
Robert Ziegelbaum
$25
Stacey Kang

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ALS United Greater New York
42 Broadway, Suite 1724, New York, NY 10004
Phone: (212) 619-1400
Email: als@als-ny.org
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