Walk ALS New York City

Mama Carmen

Welcome to our team page!

My name is Jose Dardon, and my mother was Carmen Castaneda Dardon. I lost my mother on December 7, 2021, to ALS. Many of you who had the privilege of meeting her, or who came to know her through my social media, know that she was a fun, outgoing, hardworking woman who was always smiling and making jokes. She was diagnosed in February 2020, and unfortunately, the disease progressed rapidly, taking her from us at the age of 70. She had a generous heart and loved helping others — she would have taken the food off her own plate to give to someone in need. This ALS charity walk means more to me than words can express, and I truly believe she would be proud of us for coming together to give back and support the search for a cure. Thank you all from the bottom of my heart for your love and support.


Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone regardless of age, gender, nationality, or ethnicity, although it is primarily an adult-onset disease. Currently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need.

Help us move a cure for ALS over the finish line by donating today. Together, we can make a difference in the lives of those affected by ALS.

Thank you for your support!

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