At just 21 years old, Amelia Hanson heard the words no young person should ever have to hear - a diagnosis of ALS. Amyotrophic Lateral Sclerosis is a rare and progressive neurological disease, and Amelia’s case is even more uncommon. Her ALS is linked to a mutation in the FUS gene, one of the rarest genetic causes of the disease.

But Amelia is not defined by a diagnosis.

She is a daughter, a sister, and a friend with a bright spirit and a contagious smile. Through every appointment, every hard conversation, and every new challenge, she continues to show up with courage, humor, and grace. Even in the face of uncertainty, she chooses strength. And in doing so, she inspires all of us.

Her story reminds us that hope is not passive - it’s active.

Hope in groundbreaking research.

Hope in the power of community.

Hope in families and friends who stand shoulder to shoulder and refuse to give up.

We are walking for awareness, but we are also walking for Amelia. For progress. For better treatments. For a future where ALS no longer takes so much from so many.

Please join us on June 7th, 2026, at the ALS Walk to support Team Amelia and everyone affected by ALS. Together, we can turn love into strength, and hope into action.