Thank you for visiting my fundraising page. I'm participating in ALS United Greater New York’s Walk ALS to raise funds that will support individuals and families affected by ALS.

This is my Mom, Norma Skura, she was diagnosed with ALS in 1986 at age 56.  At the time of her diagnosis she was told she had 5 years to live.  She died in July 1990.  ALS robbed her of her ability to walk; she had limited use of her hands but her mind was sharp.  Aside from being a loving wife and mother, my Mom was a secretary at W.T. Clarke High School in Westbury.  She was very well like by “her kids” as she was responsible for their locker assignments and writing hall passes if you arrived late to school, which definitely made her a favorite!  She loved her job, but unfortunately had to retire just shy of 30 years of service.  She was heartbroken.  ALS is a beast; there is no cure and once your muscles become atrophic there is no way to regain that muscle.  ALS stole from my Mom bit by bit until she was no longer able to breathe on her own.  Living life attached to a respirator was not for her; she had a DNR – Do Not Resuscitate.  It was heartbreaking to watch my Mom slip away, we felt helpless.

This is my sister Susan Skura Case, she was diagnosed in April 2026 at age 74.  We suspected she had ALS a few years ago but Susan knowing all too well about ALS she was hesitant to have her fears confirmed.  She now resides in a nursing home, is unable to walk, has difficulty with her hands, her speech is unsteady and at times difficult to understand and now she is losing her ability to swallow thus impacting her ability to eat. Her dream is to see her son and his girlfriend become engaged and marry.  She is fighting every day.  Her spirit and will to live is not broken she truly is a warrior and is determined to fight the beast.

This is Bill Lamoreaux, Bill was my boss at United Healthcare.  To say Bill was a great guy is an understatement; He was The Best.  Bill was the epitome of work hard, play hard.  Everyone at our NY Penn Plaza office loved Bill.  He always had a smile and often a one liner and would repeat lines from Caddyshack often, one of his favorite movies.  He inspired us to work hard and acknowledged us for all our efforts.  I was heartbroken to learn earlier this year that Bill passed of ALS in May 2025, he was 62.  Bill left his wife, 3 children and his parents.  I am sure this was devastating for his family and friends and most likely still is.

Lou Gehrig stepped away from his beloved career as a NY Yankee in 1939; almost 90 years ago.  I am not here to discredit all those who are working tirelessly to find a cure…but it’s 87 years ago that Lou Gehrig announced he was diagnosed with ALS!  We need a cure, we need to fight this awful disease, so no one suffers through this.

When friends and family ask what they can do for me or my sister Susan I say help me raise awareness, help me raise money for research.  Do it for all those afflicted with this disease and for all the families that feel helpless watching this disease rob them of their loved one.    

Join my team & join the walk on Saturday September 19th in Eisenhower Park, East Meadow and help me raise awareness and fight for those we love.