May is ALS Awareness Month… but for us, this isn’t a moment. It’s a mission.

Before I was diagnosed with Amyotrophic lateral sclerosis (ALS) or MND (Motor Neuron Disease over a year ago, I had no idea what this disease is. It’s changed how I move, speak, and do the smallest things… but it will never change who I am. I am still a dreamer, a fighter, full of love, purpose, and fire.But let me say something real: 

We don’t need just awareness. We need action. Awareness doesn’t slow this disease down or give us more time. Awareness doesn’t change what families like mine live every single day. What we need is urgency. We need funding; real support for research, care, and solutions that move us forward.Behind every “awareness post” is a real person — like me — fighting to hold on to independence, voice, life. Behind every statistic is a family adjusting to a reality they never asked for. 

ALS may change my body… but it will never own my spirit. This isn’t just survival. This is defiance. So, this month, don’t just share or wear a ribbon. Don’t just scroll past and say, “so sad.” Do something that matters. Support the research. Fund the science. Stand with the people living this — not just for a month, but for as long as it takes. Because, for us… this isn’t a campaign. This is our life. And we are still here, still fighting, and hoping awareness turns into a breakthrough.

Amyotrophic lateral sclerosis (ALS) or MND (Motor Neuron Disease is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. ALS can strike anyone regardless of age, gender, nationality, or ethnicity, although it is primarily an adult-onset disease. Currently there is no known cause or cure.

Being a part of ALS United Greater New York’s WALK ALS is the number one way to unite and fundraise for those living with ALS. Please consider supporting my efforts by donating through my fundraising page.Your donation today will help fund resources and services to the local ALS community, help find new ALS treatments, and move us closer to a world without the disease. 

Please feel free to send this page to any friend or family member who might be interested in donating! And please do click on the Team page to join the walk. See you on the boardwalk!

Thank you.

Ravi