ALS United Greater New York
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Push Your Limits. Fight ALS.

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As a journalist, some stories stay with you--and this is one of them. More than a year ago, I profiled Brooke Eby, a woman in her 30s with ALS, for the NYT. Brooke has been sharing her experience with ALS on social media for several years, becoming an advocate for the thousands of people living with the disease, while also creating a platform for people to share information and resources. Through reporting, I learned some sobering facts about ALS, including that people are typically given 2-5 years to live upon diagnosis, that there is no known cure, and that the limited treatments available do little to meaningfully extend a person's life. Anyone facing such a devastating diagnosis deserves, at minimum, hope for getting better.

Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive disease of the nervous system that affects cells in the brain and spinal cord. 

  • Every ninety minutes, someone is diagnosed with the disease, and someone passes away from it.
  • 90% of ALS cases occur without any known family history or genetic cause. The remaining 10% of ALS cases are inherited through a mutated gene with a known connection to the disease.
  • 55 is the average age of onset with most people who develop ALS between the ages of 40 and 70. However, cases of the disease do occur in people in their twenties and thirties.
  • Military veterans are twice as likely to be diagnosed with the disease than the general public for yet unknown reasons.

I am running the 2026 NYC Marathon with Team ALS to support those affected by ALS, spread awareness, and to fight for a cure. By partnering with ALS United Greater New York, all the funds I raise will go toward vital research, community support, and patient services. Please donate to help me in creating hope. Together, we can end ALS!

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Achievements
TeamRaiser Achievement Badge
$10,000 Raised
Raised the amount of money defined for this milestone
TeamRaiser Achievement Badge
I Made a Difference!
I supported this event with a personal donation.
Personal Progress:
of Goal
$15,306 Raised
$15,000.00
Fundraising Honor Roll
Denise and Michael Kellen
$5,000
Christopher Kellen
$2,620
Charlie & Conrad
$1,000
Nishibayashi Family
$1,000
James Godwin
$500
Adrienne & Ryan
The Driscoll Family
$250
The Liang Family
$250
Mleczko Family
$250
Zilles Family
$250
Dad & Donna
$206
Mom &John
$200
Keefe Fam
$150
Tara, Wayne, Juliette, and Eric
$150
Danica
$100
Patti Horstmann
$100
Marianna and Auston Beck
$100
Brad and Jess
$100
Brooke E
Sarah Spencer
$100
Lauren
$100
The Dauer Family
Dianna Lawrence DiPrimio
$100
Annamarie McGorty
$100
Alka and Brad
$100
Dory Spencer
$100
Scott Sheridan
$100
Cecilia Brignole
$100
Dinah
$100
Kelly Madigan
$100
Mike & Kristin Boswell
$100
Kate McLaughlin
$100
Kate and Andrew!
$100
Anonymous
Anonymous
Amy C
$100
Becca Katz
$50
Anonymous
Talia Shor
Mary Korby
Davida Sims
$50
Elaine Enright
$50
Emily Phillips
Melissa Segura
A. Shen
Ellis fam! -Todd Amanda Abel and Andie!
$50
Gayle, Todd & Charlotte
$50
Anne
$50
Amilynn
$40
MLS
$25
Anonymous
Lissa Anderson
$25
Mel
$25
Lindsay Dryden
Anonymous
$20

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ALS United Greater New York
42 Broadway, Suite 1724, New York, NY 10004
Phone: (212) 619-1400
Email: als@als-ny.org
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