ALS United Greater New York
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Push Your Limits. Fight ALS.

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Hi! I’m Maddi - thanks so much for checking out my fundraising page! It means a lot that you’re here.


A little about me…

In June of 2022, when I was 21, I lost my dad to ALS. His battle with the disease was quick, and took most of us by surprise as he was only in his mid-60s. My dad was always my biggest supporter and cheerleader - a girl dad to his core. In the years since his passing I’ve embarked on my own health journey, hoping to create habits that will support a long and happy life full of novelty and adventures - a life I am actively trying to cultivate as his time to do so was cut short. Inspired by his unwavering support of my crazy schemes and ambitious goals, adding running a marathon to the list only seems fitting.


Now, I am thrilled to say that I am running the 2026 New York City Marathon with Team ALS! By partnering with ALS United Greater New York, all the funds I raise will go directly toward where it's needed most: vital research, community support, and patient services.


A little about ALS…

Amyotrophic lateral sclerosis (ALS), often referred to as "Lou Gehrig's Disease," is a progressive disease of the nervous system that affects cells in the brain and spinal cord. Presently, there is no known cure for ALS.

  • Every ninety minutes, someone is diagnosed with the disease, and someone passes away from it.

  • 90% of ALS cases occur without any known family history or genetic cause. The remaining 10% of ALS cases are inherited through a mutated gene with a known connection to the disease.
  • 55 is the average age of onset with most people who develop ALS between the ages of 40 and 70. However, cases of the disease do occur in people in their twenties and thirties.
  • ALS is 20% more common in men than women. However, with increasing age, the incidence of ALS is more equal between men and women.
  • Military veterans (like my dad) are twice as likely to be diagnosed with the disease than the general public for yet unknown reasons.


When someone you love is battling a disease like ALS, it’s easy to feel helpless, like there’s nothing you can do. Now, I’ve joined Team ALS to push my physical limits for those who can't anymore. Through this journey, I want to bring hope, raise awareness and make an impact - and you can help me!



Please donate, because -

Together, We End ALS!


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Achievements
TeamRaiser Achievement Badge
$1,000 Raised
Raised the amount of money defined for this milestone
TeamRaiser Achievement Badge
I Made a Difference!
I supported this event with a personal donation.
Personal Progress:
of Goal
$1,100 Raised
$5,500.00
Fundraising Honor Roll
J&E
$350
Gene Schleppenbach
$100
Diane and Scott
$100
Judi
$100
Aunt Pam
$100
Nebraska Schlepps
$100
Mimi
$50
Matt H
$50
Mary and Dan Curran
$50
Ann and Sam Doss
$50
Anonymous
Julie (Schleppenbach) King
$25

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ALS United Greater New York
42 Broadway, Suite 1724, New York, NY 10004
Phone: (212) 619-1400
Email: als@als-ny.org
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