ALS United Greater New York
  • Home
  • Event Info
  • Donate
  • Log In

For JG: Running the NYC Marathon to End ALS

Donate Now

This fall, I'm running the New York City Marathon with Team ALS in memory of my grandfather, Jack "JG" Seese. JG passed away from ALS in 2005, but what I remember most isn't the disease, it's the way he met it. He faced ALS with the same big heart and sense of humor he'd always had. His laugh was infectious, his kindness was constant, and his positivity carried our whole family. I'm proud to run in his memory and put that same spirit toward the fight against ALS.

Fighting ALS has been close to my family for two decades now. After JG passed, we came together around the cause, taking part in the Walk to Defeat ALS and hosting our own annual fundraiser for ALS United in his memory, and this past year we raised our highest total ever!

Being able to run this marathon for something this close to home means a great deal to me. I'm honored to dedicate my training, my miles, and my fundraising to JG and to everyone still fighting this disease.

Amyotrophic lateral sclerosis (ALS), often called "Lou Gehrig's Disease," is a progressive disease of the nervous system that attacks the nerve cells in the brain and spinal cord. It gradually takes away a person's ability to move, speak, eat, and eventually breathe. There is still no known cure. A few things worth knowing about how far-reaching this disease is:

  • Every 90 minutes, someone is diagnosed with ALS, and someone passes away from it.
  • 90% of ALS cases occur with no known family history or genetic cause. The remaining 10% are inherited through a mutated gene linked to the disease.
  • 55 is the average age of onset, with most people diagnosed between 40 and 70, though it can strike people in their twenties and thirties.
  • ALS is about 20% more common in men than women, though that gap narrows with age.
  • Military veterans are twice as likely to be diagnosed with ALS as the general public, for reasons still not understood.

Those numbers are exactly why I'm running, and why I'm asking for your help. I'm proud to be fundraising for ALS United. Every dollar I raise goes directly to where it's needed most: vital research, community support, and patient services for people living with ALS today.

I'm running in JG's memory, and to support the people still battling ALS and the families beside them. Please consider donating and joining me in this fight. Whatever you can give makes a real difference, and my family and I are truly grateful for your support.

In loving memory of Jack "JG" Seese. Together, we can end ALS.

View More
Donate Now
Achievements
TeamRaiser Achievement Badge
Raised $5,000
Raised the amount of money defined for this milestone
TeamRaiser Achievement Badge
I Made a Difference!
I supported this event with a personal donation.
Personal Progress:
of Goal
$7,228 Raised
$7,500.00
Fundraising Honor Roll
Scaring Family
$1,000
Emily
$515
Sean Seese
$500
Kelly Dambrosio
$500
Natalie and Russ Mahland
$500
Tara Griffith
$309
Steve and Maureen Scaring
$257
Colette Salmon
$257
Butch Farris
$250
Seamus
$250
Hugh Farris
$200
Stacey Kreisler
$103
Casey Collins
$103
Ki Monnig
$103
Lisa and Bob Sadowl
$103
Daisy King
$103
Doug Shumway
$103
Bobby Hally
$100
Kevin and Quinn Collins
$100
Jake & Lindsay
$100
Derek Austin
$100
Okeans
$100
Mullaneys
$100
Sean Coughlin
$100
Jack and Blythe Seese
$100
Leon Kassabian
$100
X & Bessy
$100
Juliette Carman
$100
Rose Lavelle
$100
Quinn Scaring
$100
Phoebe Cush
$100
Shea Collins
$51
Natalie Mahland
Ben Plotnick
$50
Sean Mulls
$50
Andrew Maloney
$50
Colin and reilly
$50
Juliette Carman Matching Gift
$50
Ronan Garcia
$50
Kevin Roberti
$30
Hannah Moran
$30
Anne Moses
$26
Julia Dunn
$26
Lizzie Duggan
$26
Keelin
$26
Angela K
$26
Augusta I
$26
Lucy W
$25
Anonymous

If you think this page contains objectionable content, please inform the system administrator.

ALS NY Logo
  • Visit our Facebook page
  • Visit our Twitter page
  • Visit our YouTube page
  • Visit our LinkedIn page
  • Visit our Instagram page
ALS United Greater New York
42 Broadway, Suite 1724, New York, NY 10004
Phone: (212) 619-1400
Email: als@als-ny.org
Chapter Ratings:
https://secure.als-ny.org/images/content/pagebuilder/candid-seal-gold-facebook-2025.png
http://secure.als-ny.org/images/content/pagebuilder/Charity_Navigator_2024.png
https://secure.als-ny.org/images/content/pagebuilder/NHC.png
  • Contact Us
  • Privacy Policy
  • Site Map