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ABOUT ALS UNITED GREATER NEW YORK


ALS United Greater New York is among the largest ALS organizations in the United States, serving New York City, Long Island, Westchester, the Hudson Valley, and Northern and Central New Jersey. We lead the way in research, care services, community education, and public policy, giving help and hope to those facing the disease. People living with ALS and their families come first in everything we do, and everything we do supports the search for effective prevention strategies, treatments, and cures for ALS. And everything we do is fueled by philanthropy and fundraising.

Together, We End ALS.

 
Our Mission:
To support and empower the ALS community through a collaborative approach to fostering bold research initiatives, advancing national and state advocacy, and providing comprehensive care and support to individuals and families affected by ALS.
 
Our Vision:
  • CARE: Providing local, on-the-ground services to patients and families living with ALS throughout the Greater New York area.
  • ADVOCATE: Supporting advocacy initiatives that broaden governmental backing for research and initiatives that ensure treatments and healthcare are within reach and economically feasible for all ALS patients.
  • RESEARCH: Investing in innovative, state-of-the-art research with the goal of discovering a cure through the latest methodologies and cooperative efforts among government entities, private industry, and scientists.
  • EDUCATION: Raising awareness about ALS to inspire volunteer engagement, activism within the scientific and healthcare communities, and vital public support crucial for the battle against ALS.

OUR IMPACT


Care Services
ALS United Greater New York is committed to enhancing the quality of life of those living with ALS through the programs we offer to individuals and families affected by ALS. We understand the value of communication to those living with the disease, the ability to function safely in their home and to travel to ALS Clinics for comprehensive evaluation and treatment. Our programs are designed to meet these essentials as well as the emotional needs of all those in our ALS community.

Our free, community-base care provides support groups, caregiver support, Multi-Disciplinary ALS Clinic Centers, Equipment Loan Program, Home Assessments, Patient & Family Grant Programs, and Transportation.

Research
ALS United Greater New York is committed to supporting the most promising research projects and initiatives in the field, and to date, we have invested nearly $17 million in ALS research.

ALS United is proud to support these research Investments:

  • Safenowitz Fellowship
  • Target ALS Springboard Fellowship Program
  • Expanded Access
  • PREVENT ALS
  • The Northeast ALS Consortium (NEALS)
  • AMP ALS

Advocacy
ALS United Greater New York has taken a leading role in public policy advocacy, tirelessly working to improve the quality of life for individuals with ALS and their caregivers. Through strategic, nonpartisan efforts, ALS United has achieved significant legislative milestones at both the federal and state levels, impacting accessibility, research funding, and patient care.