Hello all,

My name is Dana and I'm leading the team Rob's Renegades in memory of Robert Tryon. Rob was diagnosed with rapid onset Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig's disease, on June 23rd 2022. With this rare form of ALS, the disease progresses frighteningly fast. Rob passed away on September 6, 2022. 

I knew Rob for 16 years. He was the love of my life, my best friend, and part of my family. Rob was one of the kindest, and most generous people you could meet. He was always there to help others. Losing him was devastating. My heart will never heal from the loss. 

Witnessing this disease destroy one of the physically strongest people I have ever known was beyond painful. This cause is very personal to me. Thank you so much for your support. With your help, we will be able to make a difference in the lives of people affected by this disease. 

**Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig's Disease, is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.

ALS can strike anyone, and presently there is no known cause or cure.

 

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries. It costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need.

That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge.