Long Island Walk ALS

Team J.A.C.K.

Thank you for helping us reach our fund raising goal! Together we can make a difference in the lives of those affected by Lou Gehrig’s Disease. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.

Why We Need Your Help

At only 39 years young, Chris was diagnosed with amyotrophic lateral sclerosis (ALS), often referred to as Lou Gehrig's Disease. Growing up he was a hard working, selfless, caring, considerate and generous person. He married his college sweetheart (Kelly) and had two beautiful children (Abigail, 10 & Jacob, 8). Chris inspired us all, as he was a devoted and loving husband and simply the best father one could wish for. On August 29, 2015 Chris lost his battle with ALS. His form of ALS, bulbar onset ALS, is very aggressive and progressed at a rapid pace that even the doctors were surprised by given his age. This disease has no cure but with your help we can change that. We can provide more funding to research, which has had recent breakthroughs including a new treatment approved by the FDA just last year. It is sadly too late to save Chris but its not too late for others. Help us help give others a fighting chance.

For those who are not familiar with this disease, ALS is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis. For Chris, and those with bulbar onset, their life expectancy is less than 2 years. 

Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.

This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.

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