ALS United Greater New York
ALS United Greater New York

My Personal Walk ALS Page

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TLDR: Please donate

There’s this club that we’ll all join eventually, but the entrance fee is steep. Really steep. The loss of a parent.

I’m in that club. So is my brother, my friend, Scott Holzberg. And my sister in life Nikki Maizel.

Scotty and I met freshman year of college. We clicked over so many shared interests, but one bond ran deeper than the rest: while my mom was sick (not ALS, but with a similar feel), his father, Norman, was living with ALS.

Norman was extraordinary. Even when on a ventilator, he never lost his joy, for music (Brrrruuuuuce!), for sports, and most of all, for his family. His everything.

Our friendship formed while our parents were slowly dying.

Years later, my best friend from childhood found love with Nikki, a superhero in real life. Nikki became family. And when her stepfather Gerry was diagnosed with ALS, and later passed, this insidious disease circled back into my life once again.
I walk for Norman.

I walk for Gerry.
I walk for my mom, Marcia.I walk for everyone in this club of ours.

This Sunday, I’ll be walking alongside Scott at the Walk to Defeat ALS. I want to raise as much as I possibly can. Yes, I’m competitive, but also because this disease is just brutal.
Before this art career of mine found me, I worked in healthcare. I specialized in ALS care. It's just awful. And still, there is no known cause. No cure.If you’re able, I’d be so grateful for your donation — truly, any amount helps. And if you feel moved to share this, I’d love you even more for it.

More about ALS:

Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow, and breathe. The average life expectancy is 2–5 years from diagnosis. It can strike anyone, at any time.Your donation helps fund care for those living with ALS, support for their families, research toward new treatments — and hopefully, one day, a cure.

Thank you. I love you.

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Stormin 4 Norman
Achievements
TeamRaiser Achievement Badge
$1,500 Raised
Raised the amount of money defined for this milestone
TeamRaiser Achievement Badge
I Made a Difference!
I supported this event with a personal donation.
Personal Progress:
of Goal
$1,850 Raised
$1,500.00
Fundraising Honor Roll
Jay Bauer
$222
The Maizel Family
$180
The Mechlinski Crew
$100
Tim Hawkins
$100
Katherine Sawyer
$100
Larry
$100
The Coburns
$100
Erica and Joe Mechlinski
$100
Joanna Alexis
$100
Mark Minicucci
$100
Pedro Rubio
$100
Andrea Wendell
$100
Mr. Jay Gutnick
$100
Debbie and Michael
$51
Amanda Fischer
$51
Lana & Greg Tallman
$50
Borzou
$50
Danna, Josh, & Jules
$50
Howard Gutnick
$50
Anonymous
$25
Anonymous

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ALS United Greater New York
42 Broadway, Suite 1724, New York, NY 10004
Phone: (212) 619-1400
Email: als@als-ny.org
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